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CureNURR1 is delighted to have partnered with Citizen Health.

Citizen Health empowers patients with over 80 rare conditions to take control of their health journey by enabling them to easily access and utilise their own medical records. It centralises medical data in one secure location, and then provides AI-driven tools so that you can search all of your own data and access shared clinical knowledge from the community. At the same time, it allows a digitised natural history dataset to be created from the aggregate, de-identified data of patients in the United States in order to accelerate critical research efforts, with minimal effort from patients.

What makes Citizen Health different?:

Personal AI Health Advocate: Insights and answers from your own medical history.

Complete Data: Your entire medical history in an organised and secure, digital profile.

Comprehensive Research Support: Facilitating digital natural history studies, as well as access to clinical trials and cutting-edge research opportunities.

Community Impact: Choose to contribute your de-identified data to accelerate research breakthrough for your condition and help add to the community knowledge base.

Create your account.